It’s about time that I started posting on this blog. Well, it’s way past the time to start posting on the regular. I got the idea about a year ago through an Instagram article. It seemed like another way to connect and have an outlet for all the stressors of life with a chronic illness. I mean, hell, I have a never-ending supply of content with M.S. It’s with me for the long haul.
M.S. has certainly changed my life and over time I’ve adapted my outlook to try to find the humor in it all. Like many, M.S. came to me in the prime of my life. Happy, healthy, newly married and a fresh chronic illness.
I was diagnosed in 2011 and knew nothing of the disease nor where to turn for advice or guidance. I was terrified! I didn’t really know where or how to look for help, but I was mostly still in shock. I’m a smart woman. I know how to research, but I was completely overwhelmed! The delivery of the diagnosis by my General Doctor was done with zero bedside manner and I couldn’t get the thought out of my head. “You’ll be in a wheelchair for the rest of your life”
Finally, I started learning how to sleep at night. I was afraid that I would wake up and not be able to walk all of a sudden. I started to read more about the disease and research how it’s supposed to “act”. Unfortunately, MS is a disease that is very different for everyone so this research is more of a way to soothe the mind. I just had to find a way to cope.
I’ve now been through 3 different DMD’s and a few relapses. I’ve learned quite a bit about Multiple Sclerosis. There have been funny stories along the way and a lot of trial and error. I’m here to share the good, bad, ugly and confusing about my MS journey. I can provide my personal experiences, feedback on common symptoms and just find a common place to share it all. I hope that I am able to reach other people with MS that need a place to go when you don’t know where else to turn. If not for that, I have plenty of funny stories and a lot of hobbies. You’re likely to read about anything from cooking and baking to mountain bikes and autocross.
I want people to interact here. Don’t be afraid to reply and post comments or questions. With time I would love to have a community of people here learning, sharing and laughing. If there’s a topic you want to know or hear more (or less) about, let me know!
I know you are a strong woman and have accomplished major hurdles. So proud of you
Very kind of you, thank you so much!